SMDSSG News

Monthly update from our CEO, Esther

Last night I listened to an interesting podcast on connections, featuring neuroscientist Dr Wendy Suzuki. Connections is a word we use a lot in this charity, and one we care deeply about in all different guises - connections for parents, our members with Down’s syndrome, siblings, and wider networks including grandparents or friends. Facilitating connections is a big part of what we do. This podcast explored research suggesting that there is a correlation between the number of social interactions we have (no matter how big or small, it can be just saying hello to someone!) and the longevity of our lives. Isn’t that astounding? The research shows that there are links between happiness and the strength of our social connections too. So, on that note please read on to hear about all the opportunities for connection we have provided for our members this month. And there will be many more in the coming months too. Let’s all get those happy feelings going!

We held our first thank you event for our wonderful volunteers in May. This was supported by our corporate friends at Flight Club, and everyone had a fantastic night. It was lovely to hear the volunteers reflecting on what they get out of working with us! Not only do they absolutely love our members, but they are also learning so much about Down’s syndrome which is so important in our efforts to raise awareness outside of the DS community!

We also held our first user group meeting, which was launched with the aim of hearing our members with Down’s syndrome loud and clear. Whilst the group was small, it was a fantastic evening with many topics covered and some lovely social time as we ate dinner together too. Please do join us for the next one if you are able. We want to support as many people as possible to get involved. If support workers or transport are needed, or if you have any other access requirements, please let us know, and we will ensure all needs are met.

Chatterbox was a busy one in May and for the first time we used the outside space! It was lovely seeing members enjoying our DOSport sessions and the play areas. We welcomed some new members, which was great. Our over 17s also enjoyed an action-packed bowling event this month.

We can’t wait for our June Chatterbox! The theme is ‘Travel and Transport’. It will be the last one before a break over summer to allow for planning, so please do come along if you can.

Other News

James Martin, MBE

Actor James Martin made MBE at Windsor Castle

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Lloyd Martin

Lloyd Martin becomes the youngest person with Down's Syndrome to complete the London Marathon...

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A tribute to Jeffrey

A tribute from Jeffrey's Dad, Michael.

It’s hard to forget his beaming smile, the cheeky twinkle in his eye and his unstoppable energy, whether it was racing around the playground, playing with water, and splashing it everywhere, especially when having a bath or playing with his sister Victoria. Jeffrey liked playing with shoes and was always quick to the door to dash out. Jeffrey will always be remembered in our household for breaking TVs, we can count on both hands how many he broke, it was actually 7 TVs, which was quite expensive, nevertheless we continued buying new TVs. Jeffrey loved Paw patrol - his favourite characters where ‘Chase’ and ‘Rubble’ and he would sing along to the theme song in own little way.

The first ever Barbie Doll with Down's Syndrome

Model Ellie Goldstein who has featured on the cover of Vogue and Glamour talks about the importance of people with Down Syndrome being represented “people need to see more people like me out there in the world.”

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