What is Down’s syndrome?
Down’s syndrome is when you are born with an extra chromosome. This is usually by chance because of a change in the egg or sperm before you’re born.
If you’ve just received a pre- or postnatal diagnosis of Down’s syndrome, you may be feeling overwhelmed and that’s completely understandable.
You are not alone. We’ve collated a range of useful sources of information, practical resources, and real stories from our members to support you during this time. Whether you’re looking for answers, reassurance, or simply want to hear from others who’ve been where you are, we’re here to help you find the support you need.
Professional’s description
Down syndrome is a genetic condition resulting from the presence of an extra full or partial copy of chromosome 21, commonly referred to as trisomy 21.
Parent’s description
Down syndrome is a natural genetic difference that happens when a baby is born with an extra copy of chromosome 21. It can affect how a child grows and learns, but every child with Down’s syndrome is unique, with their own strengths and personality.
Further information
Down's syndrome information
On our information page you’ll find respectful, caring, and positive resources to help you learn more about Down’s syndrome.
Your stories
Read stories from individuals and families sharing their personal experiences, insights, and journeys.
Useful information
Find helpful resources, guidance,
and support on a range of
important topics.
Terminology
This table provides guidance on respectful and accurate language when talking about Down’s syndrome, helping you use the right words to promote dignity, inclusion, and understanding.
| Do Not Say | Do SAY |
| Suffers from OR is a victim of Down’s syndrome | Has Down’s syndrome |
| A Down’s baby / person / child | A person / baby / child who has Down’s syndrome |
| Mentally handicapped / backward | Learning disability or intellectual disability |
| Disease / illness / handicap | Condition OR genetic condition |
| Downs (as an abbreviation) | DS (as an abbreviation if necessary) |
| Do Not Say |
| Suffers from OR is a victim of Down’s syndrome |
| A Down’s baby / person / child |
| Mentally handicapped / backward |
| Disease / illness / handicap |
| Downs (as an abbreviation) |
| Do SAY |
| Has Down’s syndrome |
| A person / baby / child who has Down’s syndrome |
| Learning disability or intellectual disability |
| Condition OR genetic condition |
| DS (as an abbreviation if necessary) |
“We all understand the struggles we as parents, and our family members with Down’s syndrome, can face, and we all celebrate each other’s achievements too! I think having that kind of community feel is important.”
Quote from parent
Support us
Down’s Syndrome Manchester is a charity, and we rely on the support of our community. Here are some ways you can show your support:
